Here we go again

http://www.cnn.com/2012/01/04/health/virginia-allergy-death/index.html?hpt=he_c2

The tragedy is unsettling, but what's worse is the loud, angry debate found in the comment section, and in the comment section of every other story like this. "The kid should've been homeschooled!" "All children have rights!" "Not my kid, not my problem!"
It's the reason I'm afraid to ask for anything. It's frightening and unfeeling and callous, but mostly it's tiring. I am so sick of this. Will this issue ever be resolved?

Am I allowed to cry?

When I was in seventh grade I had a bad allergic reaction while shopping with my father in a store that had several open bins of peanuts. My throat burned and I had trouble breathing, and although I took Benadryl, showered, and changed my clothes, I coughed for the rest of the night. The next day I was terrified to go to school. In the past I'd tried to talk to my teachers about class parties or snacks that were going to be provided during standardized testing, and they'd brushed me off or told me not to worry so much or, in one case, assured me that it would be okay, then later pulled me out of the test because they'd been wrong, but threatened to call my mother when I cried about it. I never wanted to have another allergic reaction, and I didn't know how I could go into a place that wouldn't let me protect myself.
My mother talked to my assigned counselor and to the office staff while I clutched her jacket, thinking that she might relent and take me home if I acted childish enough. I was twelve, and after she'd left one of the adults snapped at me to knock it off. They'd promised my mother that I could spend the day alone in a classroom and have all my work brought to me, and that they would try to work through this with me, but the teacher who was supervising me got in my face and threatened me in a low and deadly voice when I put aside my math to write a poem, and scornfully told me that I wasn't fooling anyone when I started to cry.
The same things happened when I was bullied, when I was afraid to attend a certain class. I would be sick and in pain and never, never want it to happen again, but when I said I was scared I was told, "No you're not. You only want attention, and everyone knows it."
I don't know how to deal with the things I'm feeling now, when I think back to when I was going to school and wonder if people at college will treat me differently, because I've half-believed for years that they were right. That I wasn't really traumatized, that I'm still not, and that I'm just trying to manipulate people for attention. I try not to let people see me when I'm emotional, because what if they realize I'm trying to manipulate them? But don't I have real emotions too? Am I ever allowed to cry?

Let's muse on my troubled past

My school system has a very high suicide rate, but it also has a high rate of students who go on to higher education. What's up with that?
My friend thinks that it's because they systematically exclude, bully, and harass everyone who doesn't fit their idea of a perfect student until they either drop out or kill themselves. I wasn't sure whether or not I believed her hypothesis until I went in to take part of my GED and found myself face-to-face with seven people, six of whom I recognized as having mysteriously vanished from school months or years previously. And I didn't just remember them from across the cafeteria, these were people who I'd seen being screamed at in the halls by teachers while I tried to look away and not stare because I'd been there and I knew how horrible it was when people stared. People who no longer wanted to speak in class, like me, and who tried not to look a teacher in the face, like me. I think I was probably the only one who routinely received death threats, but that's probably to be expected when you've got such a prominent Achilles heel.

I think my friend might be right, and I kind of hope she is. Because I've read other blogs and it looks like I'm unique in the sheer volume of shit I had to tolerate over my malfunctioning immune system. And I've read news articles where they arrested kids for doing once what my classmates did on a daily basis. And if that's the reality then I must have either deserved what happened because no one wanted to stop it, or no one wanted to stop it because these aren't nice people and it's in no way my fault.
Although the fact that I had no less than five teachers who blatantly waved peanuts around just to see what I would do makes me lean towards the "it's not my fault" line of reasoning.

Great. Now what do I do?

There was a plane crash when I was in junior high. Some kids died. It's a small community; we all knew them. At least one of them. At least in passing.
I knew this boy, but not really by name. I recognized his picture. He went to this summer program with me, a day camp to keep us out of our parent's hair. Every year there were fewer and fewer of us there, depending on when their parents through they were mature enough to stay home alone. I went there when I was ten and everything was fine. There were about fifteen of us. We had free run of the place, and for the most part we didn't abuse the privilege. I carried my EpiPen (I only had one then, and it had a friendly green cap. The dosage changed as I got older and now I've got two of them and they're an ugly yellow) in a soft black camera case tossed carelessly over my shoulder because I didn't know yet that I should care enough to buy a purse, and nobody really noticed. I wandered off when someone had a snack with peanuts. That was it.
I went there when I was eleven and it didn't even take an hour for everyone to hate me. I'd never been allergy bullied before, or beaten up in a ball pit, but there's a first time for everything, I guess.
There was a boy who waved a crust in the air and said that it came from a peanut butter sandwich, and I crossed my arms and said that it wasn't funny, and he tossed it into the trash and gave me a quick apology and left the room. He didn't try to help me, but he didn't do it again, either. He just kind of stayed away while I learned that I shouldn't use a camera case; it doesn't matter if your EpiPen is undamaged if it's been stolen and hung from a pipe. Honestly, girl. What were you thinking? You use a purse.
I withdrew a month early. Last year I'd made friends by taking off my shoes and shimmying up a light pole. It nearly gave the woman watching us a heart attack, but I knew I wouldn't fall. This year I'd made enemies by existing. I wasn't sure what I'd done, I'm still not, but I irritated a lot of people. Last year the adults said I was cute. This year they told me not to be so sensitive.
And then I went back to school, and I got a purse with multicolored stripes and a pocket that I carried a book in, and I was annoyed but not surprised when I was bullied some more, and I learned that the boy with the crust was dead in a plane crash.
What do you do with that kind of information?
He'd tried bullying me, but he'd stopped, and we'd called a truce of sorts. He certainly wasn't my friend. I didn't know if I hated him. Now he was dead. Now what?
I cried. And I think if the death threat girl died I would cry for her too.
What does that make me?

What would it take to make a scaredy-cat play with fire?

In one of my previous posts I talked about how my allergist assumed that I was no longer allergic to peanuts because I hadn't been to the emergency room in the past year. I hadn't planned on talking about him any further, but today I found an appointment reminder postcard from him in my mailbox and now I'm angry enough to elaborate on his story.

As I said before, he was insistent that I, personally, didn't need a service dog, nor did anyone else with a severe allergy. He explained to my family why he thought it was a bad idea and said that we should instead consider prescription medication to suppress my immune system. My father declined the medication and insisted that he give me the test, as they had planned over the phone. He did have me tested but kept insisting that I must not be severely allergic anymore because I hadn't nearly died recently.

The tests showed that I was still severely allergic and perhaps I hadn't nearly died recently because I was a responsible young adult who knew how to manage my allergy. 

My parents sent in the paperwork for the service dog and everything was approved. Now we just had to get permission from the school district for me to bring the dog to school.

The reason my parents thought I needed a dog was that I kept getting sick in class. I would being to cough and would get painful rashes, usually on the palms of my hands or the undersides of my arms, which indicated that I'd sat at a contaminated desk or touched a contaminated hand rail. The reactions that I was having were usually very painful, and with each new reaction there was a risk that my allergy could become much more severe. It was already at the point were it could kill me, and my parents didn't want it to become bad enough that I could die before medical help could arrive. 

About three weeks after I'd seen the allergist I started to have problems in one of my classes. After a few minutes of class my hands would begin to feel hot and itchy and I would being to cough. On one day I wore short sleeves and the reaction covered my entire right arm. After a few minutes of coughing I would either ask to leave or the teacher would order me to step outside until I could get control of myself, and then I would go down to the office and get some Benadryl from the nurse and ask that someone please clean my desk. This happened three days in a row. On the third day my assigned guidance counselor approached me as I was sitting outside the nurse's office waiting for the period to end. She sat down next to me and asked me, with great concern in her voice, why I was skipping this class. I told her that I wasn't skipping, I really was having an allergic reaction. She said, still sounding very concerned, that she knew it wasn't possible for me to have an allergic reaction unless I ate something and that I could tell her what was bothering me. I tried to explain that some allergies are more severe than others, but she left before I could finish.

She went back to her office and made several phone calls, one of which was to my allergist, whose number I assume she got from my file. She told him that, hypothetically, there was a student who was claiming to have an allergic reaction to peanuts when there were no peanuts present in the room, and that she hadn't recently eaten anything that might have been causing it. And she wondered, hypothetically, if this was possible. My allergist told her that, hypothetically, the student was lying. 

Being the kind, caring, and exceedingly nosy person that she is, my counselor decided that she should save my academic future by putting a stop to my lying. 

There were already a lot of people who didn't believe me, so many that I was honestly surprised when the teacher was the one who asked me to leave. Usually I'm told that I have to stay, and then they would watch me closely to see if they could find a flaw in my acting, and I'd either have to get up and leave without their permission or bother them enough that they let me leave so that my parents wouldn't complain to the school. So the fact that my counselor had gotten a medical professional to say that, hypothetically, I was a liar, wasn't great for the case that I should be allowed to have a service dog.

That night my father spent hours at the computer, surfing the internet and printing a stack of papers as thick as a paperback book. They all talked about severe food allergies, and they all supported what I'd said. He took it to the principal, explained what was happening with me, and then made the case for the service dog. The principal agreed.

But it really screwed me up. I already wasn't sure I deserved a service dog. The junior high had let people give me death threats and acted like I was off my nut when I tried to get them to help me. My allergist had insisted a service dog was unnecessary. And half the adults in my life got angry or exasperated or began patting me on the head when I mentioned my allergies. Was I really allergic? Was I lying so well I'd convinced myself? What could I have done wrong to make so many people angry with me? 

My father cut my old allergist out of the loop. The next time we needed a doctor's note he got it from the pediatrician, and he found a new allergist out of state that I'll go to the next time I need an allergy test. So today, when I got the appointment card from that close-minded old fart, and I realized that he still considers me his patient and thinks he can have a say in my life, I took it outside and burned it. 

Death threats

When I was in junior high I did something that irritated another girl. I'm not sure what. I just remember that one day she tapped me on the shoulder, and when I turned to her she smiled at me and told me that she was going to take a peanut and kill me.
I slapped her. I was so angry I could barely think. Not about what she'd said, but the look on her face when she'd said it. Positively gleeful.
I went to the office and said that I wanted to speak to the principal because someone had given me a death threat. He was very serious about it, very official, until I mentioned that it wasn't a knife or a gun she'd threatened me with, but a peanut. Then he relaxed. He told me that she had only been teasing me, and talked over my protests to say that kids will be kids, everyone is bullied in school. Then he told me that he could suspend me for hitting her, and if anyone was ever being mean to me again I shouldn't fight back, because if I fought back we would both have to be punished.
The next day she found me again and re-told her story, expanding the plot a little to include her going to my house and killing my pets and smearing their bodies with peanut butter so I couldn't bury them, and then killing me slowly in the empty house when I came home and was crying.
This time I didn't hit her. I didn't touch her. I didn't even insult her. I just went back to the principal, who reminded me that this happens to every kid before sending me back out of his office.
And then she would not leave me alone.
And I completely believed her. I believed that if she ever got an opportunity, if we were ever alone together, she would kill me. She looked happiest when she was imaging scenarios of my death.
And she wouldn't stop touching me. She sat behind me in third period, and she loved to brush her hands along the back of my neck and whisper threats in my ear. I hated being touched. I knew that someone's breakfast, or their hand lotion, or their pet cat could make me sick if they touched me. But my teachers told me to just ignore her, and my principal ordered me to stop using reporting her as an excuse to get out of class.
And she laughed at me. She looked so happy. I wanted to attack her and scratch her face off with my nails, but I'd been told that I would be suspended if I hurt her.
I didn't want to go anywhere alone. If I met her alone, off school grounds, I knew she'd try to kill me. But as long as I was only seeing her in the classroom she would never have a chance, and all she'd be able to do to me was imagine in my ear.
And she had friends. After a few weeks there were others who realized that no one would stop them if they wanted to threaten me. People passed me notes with threats on them, and they shouldered past me in the hall, shouting "PEANUT!" as they went. I took the notes to the office, but by now I'd so annoyed the principal that the secretaries threw me out as soon as I walked in the door. My English teacher was the only one who took the notes seriously, and she called their parents herself instead of trying to go through the principal.
I started getting sick much more often than before. My teachers got mad at me, said this was just my latest excuse to get out of class. I'd always gotten skin rashes, always felt a little off, but now it was like I was always prickly, always gray, always on the edge of sick. I wanted to tear the skin off my fingers or slam my hands in a door, do something to them because they always hurt now.
I started wearing long sleeves, and I pulled them over my hands before I touched anything. It made me feel better.
And I got used to death threats. I learned to recognize the voice of boredom and the voice of hatred and know which threats I should fear. And I learned to pretend I felt fine, and to quickly get out of the way of someone who wanted to touch me.
And sometime in eighth grade, they stopped caring. I got boring. And the girl who I'd been so sure would kill me seemed to hit some kind of anger wall, and she lashed out at everyone, and now she was the one being bullied.
But I spent a year afraid for my life, and none of my teachers cared. I told my parents a few times, when it got bad, when I was really angry, and they called the school and my teachers brushed them off and didn't actually do anything, and it upset them so much I just stopped bringing it up.
And people still threatened me, every now and then, when they felt like it.
I guess that's why they thought it would be okay to hurt my service dog.
That's why I left, you know. Someone kicked my service dog. And my teachers didn't see anything wrong with it.
So now I have a blog.
What else am I supposed to do?